filamentsproject:

A client asked if I could donate to an Autism group for her Filaments Bracelet order. Since we are both performing Artists I found The Miracle Project. SO now there are two eBay links for $10.00 generic bracelets, one to benefit The Miracle Project and the other to benefit Sweet Relief.

SWEET RELIEF EBAY PAGE

MIRACLE PROJECT EBAY PAGE

THE MIRACLE PROJECT is a 501c3 non-profit organization featuring a multi-platform socialization theater arts program that enables children and teens with autism and other special needs to express themselves through music, dance, acting, story, and writing. ALL children of ALL abilities grow in skill and in spirit while creating and performing in original musicals. This acclaimed arts program was documented in HBO’s two-time EMMY Award-winning documentary, AUTISM: The Musical.

Description
The Miracle Project offers dynamic and innovative curriculum’s, instructional workshops and branded educational supports, as well as outreach that addresse’s the needs of family and friends through our family wellness program. Through its principles of acceptance and artistic expression, The Miracle Project is dedicated to empowering those living with autism and enhancing the quality of living with autism.
General Information
The Miracle Project effectively integrates special needs traditional therapies and protocols in an interactive, social dynamic on the stage. Using music, movement and drama, it nurtures self-expression and social skills (common challenges with autism) and creates a loving, accepting environment that honors diversity and uniqueness. The Miracle Project’s methodologies and Miracles 360, a holistic approach to families and friends dealing with autism through integrated mind, body and spirit exercises and insight, provide a comprehensive and proven path to successfully unlock the world of autism.

(CNN) — Last January after a fresh snowstorm, my 9-year-old son asked me to help him build a snowman. I told him that I would be out to help shortly.

A couple of minutes later he came running back yelling, “Dad, it’s melting!”

That got my attention. It was sub-30 outside, so how could a snowman be melting?

I followed him as he ran down the hall to his bedroom. In the middle of his room was a 4-foot tall snowman, melting away.

While I removed the snowman and cleaned the remaining slush and mud, I asked him why he did it. He said, in a very matter-of-fact-tone, “It’s cold outside.”

Growing up autistic

My son has Asperger’s syndrome. For him, building a snowman in his bedroom because it was cold outside was a logical solution to a problem.

Dave Wellman has managed several employees with Asperger’s syndrome. Because of my son, “Aspies” hold a special place in my heart. So whenever I hear someone in my industry talk about hiring an Aspie, I cringe just a little. Because in technology, saying you’ve hired an Aspie is like code to say that you’ve hired a machine.

It’s true that there are a lot of benefits in hiring someone with Asperger’s. Research from Harvard Business School shows the strengths of people with Asperger’s and high-functioning autism make them especially well-suited for software development and testing. They have the ability to focus for extended periods. They have very good memories and are often highly intelligent. Their strong analytical skills make them talented at technology work.

I have Asperger’s: I am just like you

But there is a lot more to Aspies than their focus, intelligence and determination. Aspies are human. Like anyone else, they have their highs and lows, and their good and bad days.

CNN Explains: Asperger’s As a manager, you should understand how to handle the unique opportunities and challenges that come with hiring an Aspie. Here are six things you should know:

  1. Aspies are autistic

Asperger’s syndrome is a high-functioning variant of autism. People with Asperger’s are often exceptionally intelligent and verbally gifted, but they also can be socially awkward. They can react to stress differently and at times more emotionally than others not on the autism spectrum.

Many people with Asperger’s are challenged by large crowds, looking people in the eye and reading common social cues. When talking with an Aspie, don’t get offended if they look around or focus on an object in the room instead of looking directly at you. This is a coping skill that most Aspies develop over time. Listen to their words instead of focusing on their body language.

  1. Aspies are intelligent — and independent

Aspies will question authority. They will never accept “no” for an answer without being told the reason for it. They almost never accept a fact simply because of who it comes from. They will only accept it as fact if the logic proves out.

For this reason, many inexperienced managers shy away from working with an Aspie. Don’t. You just need to be prepared to justify your decisions when they’ll have a direct impact on your Aspie employee.

  1. Aspies think differently

Aspies frequently talk at length about small details instead of being brief and to the point. The reason is simple: It’s how they see the world. They hold complex mental models that include all those small interlocking details. To them, overlooking the details is ignoring part of the solution.

Be patient with them. It’s an Aspie’s way of getting it.

I have seen Aspies start reprogramming software in their head well before they get back to their desks and write the first line of code. Aspie testers will instantly see what is wrong with the software because it no longer fits their model.

All this “rewiring” has wonderfully positive results.

  1. Aspies feel deeply

It’s easy to think that Aspies are less empathetic because of how they can act. They’re not. When people are unsure how to respond to a stressful or unfamiliar situation, we can act in strange ways. This goes for Aspies, too.

One the most challenging things for any autistic individual to deal with is the cacophony of emotions that can be triggered by seemingly mundane events. For example, the cancellation of a project may be a relief to most of your team, while an Aspie may see it as people not appreciating their hard work or allowing them to finish the job.

Be patient. Pull them aside beforehand to explain the situation and ask them for their feedback and insight. It will give them a chance to process the idea.

  1. Aspies talk differently

In the most simple of terms: Aspies are blunt to a fault.

Aspies are known for being direct, speaking their mind and being honest and determined. Just be aware that an Aspie is interested primarily in significant contributions to conversation, preferring to avoid “small talk,” trivial statements and superficial conversation.

Aspies are not trying to be rude.

  1. Aspies are successful

There is good reason that Asperger’s is called the successful disorder. Their focus and dedication leads many Aspies to great heights. I doubt you could find an entrepreneur who doesn’t have a few Aspie behaviors.

Asperger’s comes with challenges along with the great opportunities. Don’t shy away from Aspies because they have different mannerisms or behaviors. Be aware of them and understand how to respond to them. If you do, you will see Aspies as the invaluable people they are and afford them the respect they deserve.

(Source: aspergersissues)

aspergersissues:

Apr. 15, 2013 — People with an Autism Spectrum Disorder (ASD) often have trouble communicating and interacting with others because they process language, facial expressions and social cues differently. Previously, researchers found that propranolol, a drug commonly used to treat high blood pressure, anxiety and panic, could improve the language abilities and social functioning of people with an ASD. Now, University of Missouri investigators say the prescription drug also could help improve the working memory abilities of individuals with autism.

Working memory represents individuals’ ability to hold and manipulate a small amount of information for a short period; it allows people to remember directions, complete puzzles and follow conversations. Neurologist David Beversdorf and research neuropsychologist Shawn Christ found that propranolol improves the working memory performance of people with an ASD.

“Seeing a tiger might signal a fight or flight response. Nowadays, a stressor such as taking an exam could generate the same response, which is not helpful,” said Beversdorf, an associate professor in the Departments of Radiology and Neurology in the MU School of Medicine. “Propranolol works by calming those nervous responses, which is why some people benefit from taking the drug to reduce anxiety.”

Propranolol increased working memory performance in a sample of 14 young adult patients of the MU Thompson Center for Autism and Neurodevelopmental Disorders but had little to no effect on a group of 13 study participants who do not have autism. The researchers do not recommend that doctors prescribe propranolol solely to improve working memory in individuals with an ASD, but patients who already take the prescription drug might benefit.

“People with an Autism Spectrum Disorder who are already being prescribed propranolol for a different reason, such as anxiety, might also see an improvement in working memory,” said Christ, an associate professor in the Department of Psychological Sciences in the MU College of Arts and Science.

Future research will incorporate clinical trials to assess further the relationship between cognitive and behavioral functioning and connectivity among various regions of the brain.

The study, “Noradrenergic Moderation of Working Memory Impairments in Adults with Autism Spectrum Disorder,” was published in the Journal of the International Neuropsychological Society. Kimberly Bodner, a psychological sciences doctoral student at MU, and Sanjida Saklayen from the Ohio State University College of Medicine co-authored the study.

Beversdorf also has an appointment in the MU Department of Psychological Sciences. Beversdorf and Christ conduct research at the Thompson Center. As the largest center in Missouri specializing in ASD and other developmental disorders, the Thompson Center is a national leader in confronting the challenges of autism and other developmental conditions through its collaborative programs that integrate research, clinical service delivery, education and public policy.

I’ve been using this medication for a year, now. It works wonders for my anxiety.

GIVE IT TO ME.

Best ever explanation of autism spectrum. Surprise! It’s not a binary.

crown-of-weeds:

hedgehoglike:

This post is some personal observations I have made about people’s perceptions of The Autism Spectrum. When I refer to “people”, I don’t mean “all people”, I just mean the people I’ve encountered personally, whether in real life or talking to online.

When people first learn about autism, it’s because their new friend [be it a real person or a fictional character] has been described as “having autism”. These people, not really understanding what autism is yet, look at their friend’s characteristics and decide that all the traits they have are autism - that’s what autism is, it’s being like Sherlock, Abed Nadir, Einstein, that quiet kid in class, your friend’s nonverbal son. The stereotypes can be nice (look at all the aspergers characters in film, books and television, which paint most of them as eccentric, bad with people, but nevertheless geniuses) or they can be bad (like “Autism moms” complaining how difficult it is for THEM to raise their child… or Louis Theroux’ documentaries painting a bleak portrait of autism “sufferers”).

At this stage, the person learning about autism usually seems to think of it as a binary state… like a lightswitch. They’ll tell you you either HAVE AUTISM and are therefore exactly like the stereotype they’ve created (lights on) or you DON’T HAVE AUTISM because you’re not exactly like that stereotype (lights off).

If they’ve read up a little more, they might have seen the word “spectrum”. Now they have a more generalized view of autism. But they get the idea of “spectrum” wrong - they see it as a linear thing: a number-line, a scale, a dimmer switch or volume control, from Zero to Autistic — or from “low-functioning” to “high-functioning”. At that point they say silly things like “You’re very high-functioning!” or “No, but I mean like, the really really autistic kids, who, like, can’t do anything because they can’t talk”. They invent this linear relationship between a person’s verboseness and “how autistic they are”.

A lot of people seem to get stuck at this point, so I think the word “spectrum” requires some explanation.

When I see the word “spectrum” I immediately imagine a rainbow, or light being split from a prism. I’m sure most people do. And sure, the spectrum of colours is derived from the electromagnetic spectrum - we get different colours at different wavelengths - it’s a continuous range.

BUT- where does white light come from? White light is a combination of all those different wavelengths. You can create new colours by mixing different colours together. You can make colours brighter by adding a little bit of the other colours. You can mix the wavelengths together at different intensities. There’s a lot of ways of combining colours.

Which essentially what the autism spectrum REALLY is. Which is why labels like “high functioning” and “severely autistic” are dumb labels. Just because one autie excels at public speaking doesn’t make them unanimously “high functioning”. Conversely, I know of nonverbal auties who are masters of writing. To tell someone with a vibrant imagination, intense emotions, passionate interests and brilliant intellect that they’re “low-functioning” because they don’t vocalize their thoughts out loud is a massive insult. To refuse someone’s pleas of help because they’re “too high functioning” is also a shitty thing to do (I’m looking at you, ATOS).

There’s lots of ways in which we function, some of which are interdependent, others independent, and the levels vary wildly between autistic people, and they also vary wildly in non-autistic people too:

- Long-term memory

- Short-term memory

- Socializing

- Physical awareness

- Spatial awareness

- Vocal ability

- Verbal reasoning / ability to understand instructions

- Linguistic skills

- Mathematical and logical skills

- Executive function / Planning

- Ability to filter information

- Processing speed of sensory input

- Ability to focus / attention span

- Emotional self-awareness

[These might not be the exact distinct cognitive ‘functions’ as according to all the sciencey literature, this was verbatim]

I see my functions as a bar chart. In the version I drew it’s a prism splitting white light into the whole spectrum, but the different colours fade out at different places (and it’s a homage to Pink Floyd :p). That bar chart can vary throughout the day, be markedly different on different days, and is always changing over time.

In times of anxiety all the functionality unanimously drains out of me. In a nice chilled out environment it all comes trickling back.

When I’m in the zone doing something I enjoy, some of those rays of colour will be shooting off the image :D

(Note how there’s no lines on the image denoting the “average person“‘s ability towards a particular function, because this shit is nigh on impossible to quantify person-to-person. All you can do is compare yourself to yourself)

I think that’s more accurate than “low functioning” vs “high functioning” ??????????

This is actually perfect.

(via politeyeti)

aspergersissues:

Children with autism are much more likely than other kids to consider taking their own lives, new research suggests.

In what’s believed to be the largest study to date looking at suicide and autism, researchers found that children with the developmental disorder were 28 times more likely than typically developing kids to contemplate or attempt suicide. Among those with autism, kids who were bullied or teased and those with depression or behavior problems were at highest risk.

The study published recently in the journal Research in Autism Spectrum Disorders looked at nearly 800 kids with autism, almost 200 without the developmental disorder and 35 kids with depression and no autism diagnosis, all between the ages of 1 and 16. Researchers reviewed interviews with the children’s mothers and looked at clinical data on the kids.

Among those with autism, 14 percent had talked about harming or killing themselves or had attempted suicide. The severity of their diagnosis and IQ score did not appear to impact whether or not a child was at risk, but certain demographic factors did. Children with autism who were male, black or Hispanic, age 10 or older and those with lower socioeconomic status did appear to be more likely to have thought about suicide.

“That was probably the most important piece of the study,” said Angela Gorman of the Penn State College of Medicine who was one of the researchers behind the report. “If you fell into any of those categories and were rated to be autistic by a parent, the more categories you were a part of increased your chances for experiencing suicidal ideation or attempts.”

Despite the increased suicide risk for those with autism, such children were still three times less likely to consider taking their own lives than kids with depression alone, the study found.

Researchers said that the findings highlight the need for children with autism to be screened for suicide risk.

Ha! I just noticed my ponify add on for Chrome sometimes catches articles I send to Instapaper. Sorry about that “foal” part at the beginning. :)

Tags: suicide autism

Mar. 13, 2013 — Newly released findings from Bradley Hospital published in the Journal of the American Academy of Child & Adolescent Psychiatry have found that autism spectrum disorders (ASD) affect the brain activity of children and adults differently.

In the study, titled “Developmental Meta-Analysis of the Functional Neural Correlates of Autism Spectrum Disorders,” Daniel Dickstein, M.D., FAAP, director of the Pediatric Mood, Imaging and Neurodevelopment Program at Bradley Hospital, found that autism-related changes in brain activity continue into adulthood.

“Our study was innovative because we used a new technique to directly compare the brain activity in children with autism versus adults with autism,” said Dickstein. “We found that brain activity changes associated with autism do not just happen in childhood, and then stop. Instead, our study suggests that they continue to develop, as we found brain activity differences in children with autism compared to adults with autism. This is the first study to show that.”

This new technique, a meta-analysis, which is a study that compiles pre-existing studies, provided researchers with a powerful way to look at potential differences between children and adults with autism.

Dickstein conducted the research through Bradley Hospital’s PediMIND Program. Started in 2007, this program seeks to identify biological and behavioral markers — scans and tests — that will ultimately improve how children and adolescents are diagnosed and treated for psychiatric conditions. Using special computer games and brain scans, including magnetic resonance imaging (MRI), Dickstein hopes to one day make the diagnosis and treatment of autism and other disorders more specific and more effective.

Among autism’s most disabling symptoms is a disruption in social skills, so it is noteworthy that this study found significantly less brain activity in autistic children than autistic adults during social tasks, such as looking at faces. This was true in brain regions including the right hippocampus and superior temporal gyrus — two brain regions associated with memory and other functions.

Dickstein noted, “Brain changes in the hippocampus in children with autism have been found in studies using other types of brain scan, suggesting that this might be an important target for brain-based treatments, including both therapy and medication that might improve how this brain area works.”

Rowland Barrett, Ph.D., chief psychologist at Bradley Hospital and chief-of-service for The Center for Autism and Developmental Disabilities was also part of the team leading the study.

“Autism spectrum disorders, including autistic disorder, Asperger’s disorder, and pervasive developmental disorder not otherwise specified (PDD-NOS), are among the most common and impairing psychiatric conditions affecting children and adolescents today,” said Barrett. “If we can identify the shift in the parts of the brain that autism affects as we age, then we can better target treatments for patients with ASD.”

(Source: aspergersissues)

Tags: autism

Last week Nick’s science teacher mentioned in an email that he was concerned that Nick is isolating himself socially. The other kids don’t know that he’s autistic, and they wonder about his odd behavior and lack of social reciprocation. There appears to be a general atmosphere of acceptance in his science classes, and I am not pressuring Nick to disclose his autism. Still, something seemed lacking in his teacher’s view, because school is seen as a social place and not just an academic place. A child who doesn’t even try to make friends is cause for concern to his teachers no matter how good his grades are.

I told his teacher that there should continue to be zero pressure on Nick to connect socially in school. Nick uses school for academics only. Everything that does not lead to him getting a diploma we have eliminated—no homeroom, no assemblies, no pep rallies, no non-required electives. His custom school day uses up way fewer tokens than a regular day would, which allows him to thrive at school and get his education. If we added in social expectations, he would be overwhelmed.

That’s not to say that we don’t want him to have a social life. Nick craves social contact to a certain degree, so we look for appropriate ways to meet that need. At Karla’s monthly teen/mentor meetings, Nick is outspoken and supportive. He engages regularly with his siblings. He has neighborhood friends who have known him since he was four and accept him as he is.

Yesterday we were in Vernonia, a small town about an hour’s drive from home with a lake that has just been stocked with 3,000 trout. Nick had been planning this day for weeks, and while we waited for Karla to meet up with us, Nick connected with a handful of boys who were out here for the same reason. They talked about the best spots on the lake to fish, what kind of bait they were using, and who had caught what so far. None of them knew each other but they were instant fishing buddies. The old coots who are always around advised the young ones, and the young ones heeded them with respect. I watched him interact and wondered if his science teacher would even recognize him. The awkward, seemingly antisocial kid who ignores his classmates was demonstrating stellar social skills to anyone holding a fishing rod. This happens every time he goes fishing and there are other people around.

So what’s going on here? Does my autistic son lack social skills or does he not? The answer is that context matters. Socializing costs a lot of tokens. When Nick is in a situation that is already difficult for him, he won’t have those tokens to spare. He will need to focus on what really matters to succeed in that situation (in science class, success = learning science). When he’s engaged in a special interest like fishing, he is rebuilding his token supply, so he has plenty to spare for non-necessities like socializing. Because he does crave social contact, connecting with his fellow fishermen at the lake is a priority, unlike making friends in school.

At his last fencing tournament, I noticed the same thing. Fencing is a different kind of special interest for Nick because it does cost him tokens due to the stress of competing and the sensory input. But he is rebuilding tokens while he spends them because he gets so much satisfaction from fencing, so he can generally participate in the social aspects of practice and competition. In Seattle two weeks ago, Nick chatted with his teammates, cheered them on, listened carefully to his coach, and even talked to fencers from other teams. Again, I suspect his science teacher would have been surprised to see how social Nick can be in that context.

(By the way, for anyone who knows fencing, Nick earned his first rating at that tournament: E2013. He’s not just a good fencer despite his challenges. He’s a good fencer, period.)

Karla often says that autistic people need to “find their peeps” as she did in the high-tech industry and among people who share her special interests. Nick’s peeps are at the lakes and rivers; they’re at fencing clubs, campgrounds, and reptile expos. Those are the places where he shines. School is a tool he is using to gain himself more options for how he wants to live his life. It’s not a place where he should be judged by his social skills. Nick is thriving in school: getting straight A’s, making the honor roll, and learning eagerly. If a teacher doesn’t see that as thriving in the absence of making friends, I am here to show him a different perspective.

Parenting, you’re doing it right.

Also of note for the use of the phrase “spending tokens” to denote functional/coping capacity.

(Source: aspergersissues)

"This is a failure of execution, not of cognition. Our brains work just fine, thank you. We just need to learn how to let other people know that."

Empathy as a Form of Communication » Michael Forbes Wilcox | Michael Forbes Wilcox

I always get annoyed at autism criteria that say things like “indulges in repetitive behaviors” because I don’t think that *I* do anything like that.

And then I realize that I’ve been watching the same DVD 24/7 for weeks straight. And that I’ve been known to listen to the same song on repeat for months.

Went to sleep for about a decade to the movie “Dune”. Have at least two former boyfriends who hate the flick now because of it.

Some day I’ll wake up and I’ll be in my eighties reading the news and there will be some puff piece on me describing how “she wore all her clothes inside out and watched the same movie every day for forty years…”

Capital A Autistic Declaration and Affirmation

heresyblasphemyandlies:

I am Autistic with a capital “A”.

Being Autistic is my self identification. I choose it. This might be one of the few social labels that has ever fit me. It may speak more to my identity, to who I am, to my way of being, of thinking, of feeling, and to my humanity than my gender, my sex, my race, or my sexual orientation have ever done. Autistic is a thing that I am. It is part of my identity.

I am Autistic is me. It is not a thing I “have” nor do I “suffer from” it any more than I “suffer from” my race, my gender, or from being human.

I am different. I think differently, I feel differently, and I emote differently from most people but I am human and my experience is human experience even though it is different.

I may or may not be diagnosed. Diagnosis is a form of medical classification. Being Autistic, (with a capital “A”), cannot be diagnosed because it is not a medical classification nor a medical condition. It is a self identification. Only I can declare myself Autistic.

Identifying myself as Autistic helps me find other people like myself. It helps me describe myself and my human experience to other people. It helps other people to learn about me and to understand me better. It helps me to understand them. Sometimes it also helps other people learn about themselves. And some of those people may chose to identify themselves as Autistic. If so, then I encourage them to do so.

I am Autistic.

Are you?

"To earn full credit on math problems, students often must verbally explain the thought processes behind their mathematical solutions. But one common characteristic among people on the autism spectrum is a nonverbal approach to mathematics, Many autistic children have mathematical skills that far exceed their verbal skills. But even when their verbal skills are on par with their math skills, they tend to solve problems nonverbally, performing much of the work rapidly and automatically in their heads. When they’re asked to explain their answers, they not only may struggle to put their thoughts into words. They may have actually bypassed the thought processes that could be verbalized by their peers."

Are Grading Trends Hurting Socially Awkward Kids? - Katharine Beals - The Atlantic

GPOY to the whole bloody thing.

"Conventional psychiatric thinking and its diagnostic categories say that people like me don’t exist. Either I don’t have schizophrenia (please tell that to the delusions crowding my mind), or I couldn’t have accomplished what I have (please tell that to U.S.C.’s committee on faculty affairs). But I do, and I have. And I have undertaken research with colleagues at U.S.C. and U.C.L.A. to show that I am not alone. There are others with schizophrenia and such active symptoms as delusions and hallucinations who have significant academic and professional achievements."

Successful and Schizophrenic - NYTimes.com

Serious parallels to adult autism here. All boils down to “if you can pass, you must not really be disabled”, which is a fucked standard to begin with.

I found the stuff about controlling sensory inputs particularly interesting. I don’t like to be left alone in silence with my thoughts because things go very wrong and I get caught in paranoid, self-hating loops. It’s a big part of the reason I go to sleep with movies on - they distract me enough from the misery that is my mind. Last night was godawful trying to sleep without adequate distraction - every little thing I’ve ever done wrong or could possibly do wrong in the future came up to haunt me.

autism awareness for aides

nekobakaz:

spastasmagoria:

realsocialskills:

fourloves:

realsocialskills:

flannelfrog asked realsocialskills: 
2012-12-30 22:29
I recently got a job offer to be an in-school aid for a gradeschooler I know with aspergers and I’m genuinely afraid to take it because, while I have teaching experience, I’ve never been an aid before. I’m afraid I’ll do something wrong and mess the kid up for the rest of his life. Do you have any advice for me?

Several piece of advice:

First, shift the way you’re thinking about this.

The problem before you is how to do right by a kid in your care. Thinking in terms of wanting to avoid doing something wrong and messing the kid up for the rest of his life is going to make it harder for you to do right by him.

You’re going to do things wrong (you’ve done things wrong in every teaching job you’ve had, it comes with the territory); and it’s going to be important for you to acknowledge and fix your mistakes. Making possible mistakes, even serious ones, a referendum on whether you are a good person, makes it a lot harder to do right by others. I’ve written about that before, here.

Treat him as a person

  • Almost universally, autistic people are treated as though they aren’t quite real, especially by caregivers
  • Often, they think of this as looking past the autism to see the real person
  • But the autism is part of who he is.
  • Don’t attribute some things to him, and others to the autism. He is real all the time.
  • He is a real person. Already.
  • Your job is not to cure him. Your job is to support him and help him to develop his abilities. Learning to do more things will not make him any less autistic, nor should it.
Do not try to make him indistinguishable from his peers
  • Because, seriously, what kind of a goal is that?
  • He’s worthwhile as a person, and he’s different from most other people, and it’s ok.
  • He has better things to do with his time than fake normal.
  • Being able to do awesome things is way better than being able to look normal while doing pointless things
  • It’s ok to be different.
  • Don’t pretend that he’s really just like everyone else, or that he will be when he grows up.
  • One of the most important things you can teach an autistic child is that it is ok to be autistic

Forget everything you think you know about the difference between autism and Asperger’s syndrome:

  • People whose diagnosis is Aspergers syndrome are autistic
  • Autistic people who can speak are disabled
  • There isn’t actually any fundamental difference
  • Except that people considered autistic are often seen as incapable, and people considered to have Aspergers are often seen as faking their difficulties
  • Assume disability and ability, and that you will have to figure out how that works for the person you’re working with

Learn how he communicates.

  • All autistic people have some sort of atypical communication
  • Some autistic people are really good at hiding it, and looking normal at the expense of understanding what is going on.
  • Autistic children, particularly boys, often pretend to be acting out in order to mask disability. Be mindful of this possibility.
  • A good percentage of the time, when autistic people repeat things over and over, they are trying to communicate something and aren’t being understood. Be aware of this, and learn how to make communication possible in this situation.
  • If he seems not to understand something, do not get angry and assume he’s just being defiant or lazy
  • Some things are really really hard to understand, even though they seem simple to people with typical development
  • For instance, an autistic child who has been isolated might find fiction other kids their age understand completely incomprehensible because they can’t relate to the experiences and relationships it describes

If he makes repetitive motions, assume they are important:

  • A lot of autistic people rely heavily on motion to think well
  • Or to communicate
  • Or to understand things
  • Or to find words
  • Or to regulate themselves.
  • If you prevent an autistic person from making repetitive motions, you’re probably also preventing them from doing things like understanding what’s going on, communicating, and learning self-control and interaction. 
  • Do not value a typical affect over learning and communication.
  • Do not say “quiet hands” for any reason ever. (Unless you’re saying something like “people shouldn’t tell you ‘quiet hands’”)

Do not make him follow rules the other kids are allowed to get away with breaking

  • Because that’s unfair, and humiliating
  • And it also prevents peer relations
  • It also prevents him from learning how rules actually work, which is a vitally important skill, especially for people who are likely to spend large parts of their life subject to arbitrary decisions made by people with too much power over them

Do not confuse him about consent, and help him learn what consent is

  • If something is an order, do not phrase it as a request. Doing so teaches people to be incapable of saying no.
  • Ask a lot of questions that actually are requests, and go with what he says, even if it’s not the answer you wanted.
  • If he always says yes when you ask him things, assume this is because he has been taught to be incapable of saying no
  • Ask questions in ways that remind him that saying no is possible
  • Or questions in ways that don’t seem to create a compliant option and a defiant option at all.
  • For instance “do you want to stay inside today, or would you rather play on the swings?”
  • But questions that are real. Not forced choices in which each option is basically compliance. 

Support him in navigating the difficult and often hateful world he lives in

  • Do not make him play with kids he dislikes, even if this means he doesn’t play with anyone
  • There are worse things than being alone. Being surrounded by people who everyone insists are nice and your friends, but who actually don’t think you’re real or treat you well is much worse than honest loneliness.
  • It’s possible, and likely, that there are very few kids, or even no kids at all, in his group who it is a good idea for him to spend time with
  • And even if you think he’s wrong about this, it’s a decision he should be making for himself (and his judgement is probably better than yours)
  • When kids or adults do bad things to him (and they will), you usually won’t be able to make them stop. You should tell him that what they’re doing is wrong, and that it’s not his fault. 
  • Knowing that it’s wrong, and that others know it’s wrong, helps a lot.

Some things you should read:

  • Ballastexistenz From the beginning. Every post. It has a lot of fundamentally important things about power, and dehumanization, and about seeing people as real. This blog has a lot of the best things that have ever been written on this topic.
  • Rolling Around In My Head is also a really good blog, written by a disabled man whose professional work is supporting people with disabilities. He says a lot of things worth knowing. Also his book Power Tools is important for understanding how this power dynamic works — and your environment and training will put pressure on you not to understand it.
  • Loud Hands: Autistic People Speaking is a really important book about autism and the world written by insightful autistic people. Buy it and read it and understand it, and it will help you to do right by this boy and others

I wholeheartedly agree with everything in this post, but that person should know they may face a lot of trouble from coworkers and supervisors if they try to work that way. it’s so worth it to go against that as much as you can, though.

I know people probably know this but just in case they don’t. it’s not necessarily individuals doing a poor job on their own sometimes. I remember a long time ago finding a forum where someone posted one of my blog posts and a poster was being critical of me for talking about “this school” or “these teachers” or “this type of therapy” instead of individuals. but sometimes principles, a powerful person, or just a strong culture can ruin a bunch of individuals.

Yes. It is difficult to get away with treating people well, unfortunately.

That said, individual people are still responsible for what they do.

This doesn’t just apply to aids, etc. 

and not just with autistic people.  One of my housemates is disabled (well, all of us are disabled, it’s a house for independent disabled adults who otherwise can’t afford housing); I don’t know the diagnosis or story, she is rather limited with speech and demonstrates some limited learning abilities, but quite capable at living independently.  She has been placed in our household, after all, and has been here longer than I have, so over 3, 4 years.  In all of my interactions with her, I get the sense that she’s been taught to comply, to avoid conflict, even at the cost of her own wants and needs.  

So over the years, I’ve been phrasing requests to have compliant options for her.  Like whether she’d like to have chicken or would like ham.  I’ve gotten some interesting results that indicate that she trusts me, or at least sees me as an authority figure in the house.  For example, she asked me whether she can have a tv and watch movies in her room.  I was shocked, one because she had initiated social contact, and two that this was something that she thought she needed permission for.  On the other hand, I’m glad that she’s asking instead of assuming she can’t have it.  Maybe I can convince her that she doesn’t need to ask for permission for things like TVs.  She also asked whether she could go to the holiday party and whether I could contact our worker to arrange for transportation to get there.  

I think that as she gets older, it will get harder to undo the compliance learning she has, but if it will lead to her having a better quality of life, definitely worth it.  I’m no aid or case worker though, I’m just her housemate.  It’s not my job to put her through any sort of “therapy”, whether she wants it or not.  It is part of being a good housemate and a decent human being to treat her well, to keep her limitations in mind, and, well, just be a decent human being when interacting with her, whether phrasing things a certain way for her, or keeping out of the kitchen for a few minutes so she can finish up what she’s doing (people within a certain distance of her spooks her out of the room).  

So from my perspective, this list isn’t just for aides working with autistic students, but also goes for anyone who interacts with disabled people in general.  A lot of the issues happen with us autistic people, yes, definitely agree, and the autism communities need to catch up with the greater disability communities in a lot of ways, and I think this is one of them. 

Tags: autism

Capital A Autistic Declaration and Affirmation

heresyblasphemyandlies:

I am Autistic with a capital “A”.

Being Autistic is my self identification. I choose it. This might be one of the few social labels that has ever fit me. It may speak more to my identity, to who I am, to my way of being, of thinking, of feeling, and to my humanity than my gender, my sex, my race, or my sexual orientation have ever done. Autistic is a thing that I am. It is part of my identity.

I am Autistic is me. It is not a thing I “have” nor do I “suffer from” it any more than I “suffer from” my race, my gender, or from being human.

I am different. I think differently, I feel differently, and I emote differently from most people but I am human and my experience is human experience even though it is different.

I may or may not be diagnosed. Diagnosis is a form of medical classification. Being Autistic, (with a capital “A”), cannot be diagnosed because it is not a medical classification nor a medical condition. It is a self identification. Only I can declare myself Autistic.

Identifying myself as Autistic helps me find other people like myself. It helps me describe myself and my human experience to other people. It helps other people to learn about me and to understand me better. It helps me to understand them. Sometimes it also helps other people learn about themselves. And some of those people may chose to identify themselves as Autistic. If so, then I encourage them to do so.

I am Autistic.

Are you?